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badbones
#1 Posted : Wednesday, December 05, 2012 6:49:59 PM Quote
Rank: Newbie

Groups: Registered

Joined: 12/5/2012
Posts: 2
Hello, I have recently joined NRAS, I am 25 and have had RA for 5 years. I have tried different medications and alternative therapies. I would be interested in chatting with someone of my similar age to see how you are coping with day to day life with RA. At the moment I am trying out a eating plan i.e. wheat, diary, sugar free diet and have seen some improvement though I am still on high dose meds.
I look forward to hearing from anyone who would like to reply.
Smile
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emily_col
#2 Posted : Saturday, January 26, 2013 2:11:06 PM Quote
Rank: Newbie


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Joined: 12/3/2009
Posts: 4
Hi, sorry I realise you posted this a little while ago but I've only just seen your post. I'm 29 but was diagnosed 8yrs ago so have lived with ra for most of my20's. Would be happy to chat/ get in touch.
Emily
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sylviax
#3 Posted : Sunday, January 27, 2013 4:15:54 PM Quote
Rank: Advanced Member


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Joined: 5/28/2012
Posts: 665
Location: Newton Abbot
Hi to you both - I'm a bit out of your age range, but hopefully some other young sufferers will notice this again and get in touch.

Best wishes - Sylvia
Be kinder than is necessary because everyone you meet is fighting some kind of battle
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jenni_b
#4 Posted : Sunday, January 27, 2013 4:31:43 PM Quote
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Joined: 12/3/2009
Posts: 2,237
Location: nr Southampton
I'm 37 now so I'm probably out of your group now, but I was 20 when dx!
I tried every diet going at the start
It did no good I'm afraid
Apart from I'm often in a flair after too much alcohol
Or MSG laden food

The thing I did do was aqua fit and I'm sure that helped.
The hydro pool exercises helped too.

I played musical instruments and sang and sure this helped too.
how to be a velvet bulldoser
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badbones
#5 Posted : Tuesday, March 05, 2013 3:40:53 PM Quote
Rank: Newbie

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Joined: 12/5/2012
Posts: 2
Hi there,

Sorry only now replying I have not been online for a while. It is so nice to have replies to this message. I am still getting used to using the site and I am really interested in attending meetings etc on RA to find out more. I am currently on 20mg Methotrexate injections and having failed on enbrel injections I am now receiving Rutuximab infusions, I have just had my second dose last week and due for another in a 2weeks, feeling extremely drained and washed out but i must say since i started the rtx in August I have seen a big improvement in my flare up. i am interested to know what kinds of medication others are on.

Also how are you finding working with RA, I manage to keep a full time job which some days it can be really tough.

Due to the inflammation the bones in my wrists have been extremely damaged and i can no longer bend them forward or backwards which is both painful and frustrating i regularly exercise but the physiotherapist has told me i will not get much movement back. Does anyone have any advice on how i could deal with this?

Its really nice to have people to speak to who are going through the same feelings i really appreciate your replies.
Smile Cath xxx
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Natalie
#6 Posted : Wednesday, March 06, 2013 11:31:08 PM Quote
Rank: Member

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Joined: 7/20/2012
Posts: 25
Location: Maidenhead
Hi Cath

Sorry to hear that you've had a rough time with the RA in your wrists. Have any of your other joints been affected by RA?

I'm 24 and have had been diagnosed for a year now. I currently take Sulfasalazine, MTX, Diclofenic, Lanzoprasole and painkillers!
I have 2 young Children, a little boy who will be 4 in May and a little girl at 16 months. I find things very hard, especially looking after my 2 monkeys!

Do you use ice packs at all for your wrists? I love ice packs, I rely on them most nights for my knees! 😊
Hydrotherapy is also really good, have you spoke to your rheumatologist to see if there's anything else they can do for you?

Take Care
Natalie 😊
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Naomi1
#7 Posted : Thursday, March 07, 2013 12:54:30 AM Quote
Rank: Advanced Member


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Joined: 9/3/2011
Posts: 717
Location: Torbay
Hi Cath. I'm a bit too old at 48 but just wanted to ask if you've tried wrist splints. I do sympathise with you because I'm having lots of trouble with my wrists. I find the splints help.

I don't know if you use Facebook. Some of the groups are helpful and a good way of meeting others in a similar situation. New member Sarah, aka Mushy, has posted a link to her group if you're interested.

xxx
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